Autoimmune hepatitis (AIH) is in clinical and research fields overshadowed by other more generally occuring liver diseases such as viral hepatitis and (non)alcohilic steatohepatitis. Regimes for the treatment of AIH are unchanged for over 20 years now. With this in mind, it seems reasonable that more and more patients ask their physician when some progress can be expected. The majority of excisting research on AIH concludes that there is a substantial lack of data on epidemiology, pathophysiology, diagnosis, quality of life and treatment, in short, decent clinical studies. Especially compared to other liver related research, the silence in the AIH field is extremely loud.
For this reason the dutch AIH working group was founded. It is a nationwide initiative initiated by eight academic and three large general hospitals. Over 75% of all dutch hospitals have cooperated in the initiative already. The main purpose of the AIH working group is to ensure more insights in pathophysiology and risk factors and to improve diagnostic and treatment options for patients.
A large nationwide database had been instituted and several research papers have already been published.